http://www.nytimes.com/2010/01/01/health/policy/01grady.html?pagewanted=1&emc=eta1
By KEVIN SACK
Published: December 31, 2009
EJIDO MODELO, Mexico — On the two-hour bus rides from her village on Lake
Chapala to a dialysis clinic in Guadalajara, Monica Chavarria’s thoughts would
inevitably turn to the husband and son she left behind in Georgia.
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The Breaking Point
This article is part of a series about closing the dialysis unit at Grady
Memorial Hospital in Atlanta.
Multimedia
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http://www.nytimes.com/interactive/2009/12/31/us/20091231-Grady/index.html#
In Order to Live, Living Apart
Related
The Breaking Point: Hospital Falters as Refuge for Illegal Immigrants (November
21, 2009)
A decade after crossing illegally into the United States, Ms.
Chavarria returned home in September after learning that Grady Memorial Hospital
in Atlanta was closing the clinic that had provided her with dialysis, at
taxpayer expense, for more than a year.
Grady, a struggling charity hospital, had been absorbing multimillion-dollar
losses for years because the dialysis clinic primarily served illegal immigrants
who were not eligible for government insurance programs.
Hospital officials decided the losses were threatening Grady’s broader mission
of serving the region’s indigent population. But before closing the clinic on
Oct. 4, they offered to pay to relocate patients to their home countries or
other states, and to provide dialysis for three transitional months.
Ms. Chavarria, 34, left quickly with her 8-year-old son, Jose Andres, an
American citizen who had never been to Mexico. But she has not found a solution
there. Her free treatments have run out, and she can now afford dialysis only by
poaching the savings her family has set aside for a transplant.
Her husband, Roberto Barajas, 37, and their 14-year-old son, Eduardo, remained
in Georgia so Mr. Barajas could keep working and wire money home for her care.
In separate interviews, one in the farming village of Ejido Modelo, the other in
the Atlanta suburb of East Point, Ms. Chavarria and Mr. Barajas each wept while
describing their separation after 15 years of marriage.
“I think about them all the time,” said Ms. Chavarria, whose raven hair falls
past her waist. “It was the hardest thing to leave without them.”
Mr. Barajas, a stocky road paver, shielded his eyes with his hand. “You don’t
know if you’ll be able to see each other again,” he said. “We had always been
together, the four of us, and then suddenly they had to go.”
Like other patients repatriated by Grady this fall, Ms. Chavarria gambled that
her chances would be better at home. The costs of dialysis and a possible kidney
transplant would be considerably lower in Mexico, and she had three siblings
there willing to donate an organ.
But it has not worked out that way.
On Dec. 22, she exhausted the 30 free dialysis sessions that Grady had provided
at a gleaming private clinic in Guadalajara. On her doctor’s advice, she had
been stretching out the treatments, which filter toxins from the blood, by going
two times a week instead of the recommended three. Going without dialysis can
prove fatal in as little as two weeks, and the twice-a-week regimen has at times
left her weak.
Now Ms. Chavarria is dipping into money that Mr. Barajas and other relatives
have raised in East Point, which has long been a destination for migrants from
Ejido Modelo. They have held raffles and charity soccer tournaments, and placed
gold-wrapped donation boxes at taquerias and stores.
The fund-raising proceeds — about $11,000, according to Mr. Barajas — had been
earmarked to defray the $20,000 cost of a transplant. So it is a setback each
time Ms. Chavarria has to withdraw $100 for a dialysis treatment.
Everywhere, it seems, there are roadblocks to affordable care. The dialysis unit
at Guadalajara’s public hospital, which offers heavily discounted prices to the
uninsured, has a waiting list that extends for months. Ms. Chavarria is not
eligible for the insurance plan known here as Social Security, which is limited
to salaried workers. The country’s five-year-old health program for the
uninsured, Seguro Popular, does not cover end-stage renal disease.
On top of the cost, the preparations for a kidney transplant can take months.
Ms. Chavarria’s brother, Roberto, her first volunteer, recently learned that his
own kidneys might not be functioning properly, possibly ruling him out.
When Grady officials decided last summer to close the dialysis clinic for
budgetary reasons, the board chairman, A. D. Correll, declared that “people are
not going to die on the street because of these actions.” But that pledge may
ignore the conditions that await patients who return to Latin America.
Two Grady dialysis patients have died in Mexico since the clinic’s closing,
along with one exceedingly ill patient in Atlanta, according to the hospital. A
Grady spokesman said the deaths resulted from severe kidney disease and not from
insufficient dialysis.
But one of the Grady patients who died in Mexico, Adriana Ríos Fernández, was
receiving dialysis only twice a week because her family could not afford a third
treatment that might have helped clear her lungs of fluid, her father said. And
recent research has found that dialysis patients in Ms. Chavarria’s state of
Jalisco, where half of the residents are uninsured, are three times more likely
to die than Hispanic dialysis patients in the United States.
“To have end-stage renal disease in Mexico is a tragedy,” said Dr. Guillermo
Garcia-Garcia, the lead author of the study. “If you don’t have Social Security,
if you don’t have private insurance, you are condemned to die.”
Skip to next paragraph
The Breaking Point
This article is part of a series about closing the dialysis unit at Grady
Memorial Hospital in Atlanta.
Multimedia
Audio Slide Show
In Order to Live, Living Apart
Related
The Breaking Point: Hospital Falters as Refuge for Illegal Immigrants (November
21, 2009) The health care dichotomy in Mexico is stark. At Guadalajara’s
Hospital Civil, the teeming public hospital where Dr. Garcia is chief of
nephrology, the dialysis unit runs eight stations around the clock, and meets
barely half the demand. Doctors there said they see uninsured patients die every
week for lack of dialysis. By contrast, the private clinic for the insured where
Ms. Chavarria received her Grady-sponsored treatments is operating at one-fourth
of its capacity.
During her journeys for dialysis, and her three-and-a-half hours in the chair,
Ms. Chavarria daydreams that her family might some day reunite. “I hope it’s
soon, while things are all right,” she said, as the bus rolled past fields of
cactus and maize.
But it is difficult to block out the grim realities. She knows that she may
never be strong enough to cross the border again and that her continued
treatment may depend on her husband’s ability to earn $11 an hour in Georgia,
rather than $12 a day here as a farmhand.
There are an estimated seven million illegal immigrants in the United States who
have no medical coverage. New research shows there may be 5,500 with end-stage
renal disease alone. The health care bills in Congress do not address the
problem, leaving public hospitals like Grady to treat the immigrants with an
ever-fraying safety net.
Most of the 66 immigrants who were dislodged by the Grady clinic’s closing have
stayed in Atlanta to take advantage of the hospital’s offer of three months of
treatment. They have signed documents stating that they understand that Grady’s
financial assistance will end on Sunday, although the hospital’s contract with a
commercial dialysis provider lasts until September.
Ten to 13 of the patients appear to have returned to Mexico, with varying
success. Pastor Chavez, 37, said his aunt had managed to buy insurance for him.
Patricia Pichardo, 36, a mother of three, said she was borrowing from friends to
afford her twice-weekly dialysis.
Antonio Camron, 20, said he did not know what he would do after his
Grady-sponsored treatments ended in late December. “I have very little time
left,” he said.
The repatriation of most of the patients was carried out by MexCare, a
California company hired by Grady. As an additional inducement, MexCare offered
many patients a year of health insurance to follow their three months of paid
dialysis.
But six patients interviewed in Mexico this month said they knew of no steps
being taken to obtain meaningful health insurance. One of MexCare’s principals,
George Ochoa, said in a brief interview that the company’s offer was to pay for
a year of Seguro Popular. That program does not cover dialysis or kidney
transplants, according to its national commissioner, Salomón Chertorivski
Woldenberg.
Matt Gove, a senior vice president at Grady, said the hospital had not been
aware that MexCare was promising patients insurance coverage.
Residents of this farming village on the south shore of Mexico’s largest lake
began seeking work in the suburbs near Atlanta’s airport in the mid-1970s.
Relatives then summoned relatives until the apartment complexes filled with
immigrants. On their days off from construction and landscaping, they
reconstituted their social circles and soccer teams as if they had never left
home.
During the holidays, when the population of Ejido Modelo swells with homecoming
immigrants, the rutted, unpaved streets are dotted with cars bearing Fulton
County, Ga., license plates.
Mr. Barajas’s family came in waves. He said he made the first of his three
illegal crossings at age 17 in 1989, shortly after meeting Ms. Chavarria at the
soccer field in Ejido Modelo. They courted by telephone and mail, and he
returned to marry her in the whitewashed village church. After Eduardo was born,
she followed him back to East Point.
Their American dream was to save enough to build a three-bedroom house in Ejido
Modelo, and then return home. But in February 2008, while working at an auto
parts plant near Atlanta, Ms. Chavarria began having trouble breathing. Doctors
at Grady diagnosed her kidney failure and placed her on dialysis. She and her
husband were astonished there was no charge.
When it came time to leave, the family made the heartbreaking decision that
Eduardo would remain in Georgia because he wanted to stay in American schools.
Jose Andres, they decided, was too young to leave his mother (and unlike his
brother had the advantage of American citizenship). He is struggling in school
in Mexico, according to his parents, because he had never learned to write in
Spanish.
Mr. Barajas and Ms. Chavarria said their tearful farewells at a McDonald’s
restaurant at Grady, where her MexCare escort had suggested they meet. Mr.
Barajas’s sister has moved in to their apartment to help care for Eduardo, but
the emptiness remains.
“It’s hard to get home from work or some other place and not see her here,” Mr.
Barajas said.
Ms. Chavarria is living with her 64-year-old mother, who welcomes each morning
by baking tortillas over a wood fire. Other family members live in a compound of
small brick houses surrounding a communal courtyard that is planted with citrus
and poinsettias. Ms. Chavarria said she was happy to be with her extended
family, but was “missing my own.”
She seems fatalistic about the chances for a reunion, in the house they have all
but finished.
“I would want good things to happen,” Ms. Chavarria said, “but destiny is not in
our hands.”